Jacqueline Jencquel
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Ecrivain et conférencière, spécialiste du catharisme, Florence Ferrari a publié il y a un an - après plusieurs ouvrages à caractère historique - Mezza Voce, un roman abordant le sujet douloureux et controversé de l'euthanasie. Elle animera la prochaine Pause Culture, évoquant « Le droit de mourir dans la dignité ».
C'est pour avoir été sensible au combat de Marie Humbert en faveur de son fils gravement handicapé qui ne souhaitait plus vivre que Florence Ferrari a entrepris l'écriture de Mezza Voce, un récit emprunt d'humanisme, évoquant aussi, à travers l'histoire de Chloé et Djamel, le thème de la mixité sociale.
Jacqueline Salenson, déléguée pour l'Hérault de l'ADMD (Association pour le Droit de Mourir dans la Dignité) participera à la conférence-débat aux côtés de l'auteur.
Pause Culture - « Le droit de mourir dans la dignité », par Florence Ferrari.
Jeudi 11 février à 19 heures - Le Clos des Oliviers, 53 rue de l'Aven 34980 St. Gely du Fesc .
Entrée libre.
C'est pour avoir été sensible au combat de Marie Humbert en faveur de son fils gravement handicapé qui ne souhaitait plus vivre que Florence Ferrari a entrepris l'écriture de Mezza Voce, un récit emprunt d'humanisme, évoquant aussi, à travers l'histoire de Chloé et Djamel, le thème de la mixité sociale.
Jacqueline Salenson, déléguée pour l'Hérault de l'ADMD (Association pour le Droit de Mourir dans la Dignité) participera à la conférence-débat aux côtés de l'auteur.
Pause Culture - « Le droit de mourir dans la dignité », par Florence Ferrari.
Jeudi 11 février à 19 heures - Le Clos des Oliviers, 53 rue de l'Aven 34980 St. Gely du Fesc .
Entrée libre.
ZURICH—Daniel Gall, a French actor, was skeptical when his sister and her husband told him two years ago that they wanted to commit suicide. Genevieve Gall-Peninou was 81 and said she could no longer bear the Alzheimer's Disease she had suffered for several years. Yves Peninou, 86, didn't want to live without her.
"No doctor would ever help you," he told the couple. "Neither one of you is ill enough!"
But soon after, the Peninous, both doctors, contacted Dignitas, a Zurich-based organization that helps people end their lives. A Dignitas doctor in Zurich reviewed the Peninous' case and agreed to write a prescription for sodium pentobarbital, the lethal drug typically used for assisted suicides in Switzerland. They paid Dignitas its fee of 10,000 Swiss francs. ($10,500).
When Mr. Gall accompanied the couple to Switzerland in January 2008 for the final act, his doubts intensified about their decision–and about Switzerland's legalized assisted-suicide movement.
The suicides took place not in a private medical facility, but in an industrial space next to a large brothel, Mr. Gall says, just two spare rooms without a bathroom. He says two Dignitas volunteers, neither a doctor, helped prepare the couple. There was just one single bed, forcing Mr. Peninou to sit in a chair near his wife when the couple took the lethal dose.
"No doctor would ever help you," he told the couple. "Neither one of you is ill enough!"
But soon after, the Peninous, both doctors, contacted Dignitas, a Zurich-based organization that helps people end their lives. A Dignitas doctor in Zurich reviewed the Peninous' case and agreed to write a prescription for sodium pentobarbital, the lethal drug typically used for assisted suicides in Switzerland. They paid Dignitas its fee of 10,000 Swiss francs. ($10,500).
When Mr. Gall accompanied the couple to Switzerland in January 2008 for the final act, his doubts intensified about their decision–and about Switzerland's legalized assisted-suicide movement.
The suicides took place not in a private medical facility, but in an industrial space next to a large brothel, Mr. Gall says, just two spare rooms without a bathroom. He says two Dignitas volunteers, neither a doctor, helped prepare the couple. There was just one single bed, forcing Mr. Peninou to sit in a chair near his wife when the couple took the lethal dose.
http://online.wsj.com/article/SB20001424052748703414504575001363599545120.html
A brain scan gives vegetative patient the power to say 'Yes' and 'No'
A man who was presumed to be in a vegetative state for five years has answered questions using his thoughts alone in a ground-breaking experiment that promises to allow some patients who are “locked in” by brain injuries to communicate.
The 29-year-old Belgian was able to reply to simple “yes”/”no” questions such as “Is your father’s name Alexander?” by changing his brain activity. Scientists then read his answers by studying functional magnetic resonance imaging (fMRI) scans.
He had previously failed to show any signs of consciousness after suffering a severe brain injury in a road accident. A vegetative state (VS), in which patients wake from a coma but appear to have no awareness, had been diagnosed.
The remarkable results, from British and Belgian researchers, suggest that at least some VS patients are able not only to hear and understand people, but also to respond mentally in ways that can be harnessed for communication.
“It’s very possibly the case that we will get into a situation within ten years where patients incapable of any response are able to communicate using their brain alone on a day-to-day basis,” said Adrian Owen, of the Medical Research Council (MRC) Cognition and Brain Sciences Unit in Cambridge, a leader of the research.
The 29-year-old Belgian was able to reply to simple “yes”/”no” questions such as “Is your father’s name Alexander?” by changing his brain activity. Scientists then read his answers by studying functional magnetic resonance imaging (fMRI) scans.
He had previously failed to show any signs of consciousness after suffering a severe brain injury in a road accident. A vegetative state (VS), in which patients wake from a coma but appear to have no awareness, had been diagnosed.
The remarkable results, from British and Belgian researchers, suggest that at least some VS patients are able not only to hear and understand people, but also to respond mentally in ways that can be harnessed for communication.
“It’s very possibly the case that we will get into a situation within ten years where patients incapable of any response are able to communicate using their brain alone on a day-to-day basis,” said Adrian Owen, of the Medical Research Council (MRC) Cognition and Brain Sciences Unit in Cambridge, a leader of the research.
http://www.timesonline.co.uk/tol/news/science/medicine/article7014246.ece
SYDNEY (Reuters) – When doctors and staff realized that a cat living in a U.S. nursing home could sense when someone was going to die, the feline, Oscar, was portrayed as a furry grim reaper or four-legged angel of death.
But Dr. David Dosa, who broke the news of Oscar's abilities in a paper in the New England Journal of Medicine in 2007, said he never intended to make Oscar sound creepy or his arrival at a bedside to be viewed negatively.
Dosa said he hopes his newly released book, "Making Rounds With Oscar: The Extraordinary Gift of an Ordinary Cat" will put the cat in a more favorable light as well as providing a book to help people whose loved ones are terminally ill.
But Dr. David Dosa, who broke the news of Oscar's abilities in a paper in the New England Journal of Medicine in 2007, said he never intended to make Oscar sound creepy or his arrival at a bedside to be viewed negatively.
Dosa said he hopes his newly released book, "Making Rounds With Oscar: The Extraordinary Gift of an Ordinary Cat" will put the cat in a more favorable light as well as providing a book to help people whose loved ones are terminally ill.
More than four out of five people [in the UK] believe that relatives should be allowed to help terminally ill loved ones take their own lives, a poll for The Daily Telegraph has found
The public's support for a change in the law on assisted suicide and euthanasia was uncovered by the YouGov poll following a succession of high profile court cases.
Three quarters of those polled said the law should be amended to allow assisted suicide, a crime punishable by up to 14 years in prison.
Even if the law was not changed, more than 80 per cent of the 2,053 people questioned said relatives of terminally ill people, who had made it clear they wanted to die, should not be prosecuted.
Sir Terry Pratchett, the author who suffers from Alzheimer?s disease, is due to deliver a lecture in which he will call for assisted suicide "tribunals" that would give the terminally ill permission to end their lives. In the Richard Dimbleby Lecture, he will offer himself as a test case for just such a tribunal.
The public's support for a change in the law on assisted suicide and euthanasia was uncovered by the YouGov poll following a succession of high profile court cases.
Three quarters of those polled said the law should be amended to allow assisted suicide, a crime punishable by up to 14 years in prison.
Even if the law was not changed, more than 80 per cent of the 2,053 people questioned said relatives of terminally ill people, who had made it clear they wanted to die, should not be prosecuted.
Sir Terry Pratchett, the author who suffers from Alzheimer?s disease, is due to deliver a lecture in which he will call for assisted suicide "tribunals" that would give the terminally ill permission to end their lives. In the Richard Dimbleby Lecture, he will offer himself as a test case for just such a tribunal.
FOXNews.com
On Both Sides of the Atlantic, a Debate Over Quality of Life
Two legal cases dealing with the rights of family members to decide life or death for a critically injured loved one have touched off a storm of controversy on both sides of the Atlantic, landing one mother in prison for life, and locking a young couple in battle with the very doctors charged with keeping their infant alive.
In East London, England, 57-year-old Frances Inglis, self-confessed mercy killing of her 22-year-old son Thomas, who doctors said would live the rest of his life in a vegetative state after a catastrophic accident, made headlines when courts ruled her act was murder and sentenced her to life in prison.
On the other side of the Atlantic, in Edmonton, Canada, a young couple is engaged in a life-and-death court fight, trying to keep doctors from essentially doing the same thing to their infant son who suffered brain damage.
In East London, England, 57-year-old Frances Inglis, self-confessed mercy killing of her 22-year-old son Thomas, who doctors said would live the rest of his life in a vegetative state after a catastrophic accident, made headlines when courts ruled her act was murder and sentenced her to life in prison.
On the other side of the Atlantic, in Edmonton, Canada, a young couple is engaged in a life-and-death court fight, trying to keep doctors from essentially doing the same thing to their infant son who suffered brain damage.
Vous trouverez ci dessous un résumé du rapport 2006-2007 de la Commission fédérale de contrôle et d’évaluation de l’euthanasie en Belgique ainsi qu’un graphique reprenant les années 2008 et 2009 (le rapport 2008-2009 est actuellement en préparation) : vous y constaterez que si la grande majorité de ces euthanasie sont pratiquées par injection I.V. de Pentothal,, près de 3% sont des suicides assistés par ingestion d’une potion similaire à celle utilisée en Suisse par Exit et Dignitas.
Source : Marc Englert, professeur à l' université de Bruxelles et rapporteur sur la mission d' évaluation de l' euthanasie en Belgique
Source : Marc Englert, professeur à l' université de Bruxelles et rapporteur sur la mission d' évaluation de l' euthanasie en Belgique
resume_du_rapport_2008.pdf
(156.91 Ko)
graphiques.pdf
(77.9 Ko)
Ce discours et ces photos en disent long: notre combat est juste et nous devons continuer à militer comme nous le faisons. La qualité des intervenants , l'enthousiasme des personnes présentes, la force de notre président , qui ne l' oublions pas, souffre d' une maladie chronique. IL ne marche pas du pas léger et insouciant de ceux que la vie n' a pas encore blessé et cependant, il l' aime cette vie, il la vit pleinement tout en donnant aux autres la force de sa pensée et de son expérience, ainsi que son bien le plus précieux: son temps.
Aidons-le et appuyons- le tous car , vraiment, il le mérite.
Madame la Première Adjointe au Maire de Paris, ma très chère Anne,
Mesdames et Messieurs les Parlementaires, Chères Danièle, Henriette et Sandrine, chers Alain, Jean-Louis et Manuel,
Monsieur le président du Conseil régional, mon cher Jean-Paul
Monsieur le maire du Xème arrondissement, mon cher Rémi,
Mesdames et messieurs les élus,
Chers amis de l’ADMD,
Mesdames et Messieurs,
Tout d’abord, je me dois de remercier en votre nom à tous notre hôte de ce jour, le maire de Paris, Bertrand Delanoë, représenté par sa première adjointe, mon amie Anne Hidalgo, dont les mots sont empreints d’humanisme, de Liberté et – ce qui nous importe le plus – de l’incertitude de ce que sera la fin de vie lorsque, comme le chante si joliment Jacques Brel, la pendule d’argent qui ronronne au salon nous attendra.
Mesdames et Messieurs les Parlementaires, Chères Danièle, Henriette et Sandrine, chers Alain, Jean-Louis et Manuel,
Monsieur le président du Conseil régional, mon cher Jean-Paul
Monsieur le maire du Xème arrondissement, mon cher Rémi,
Mesdames et messieurs les élus,
Chers amis de l’ADMD,
Mesdames et Messieurs,
Tout d’abord, je me dois de remercier en votre nom à tous notre hôte de ce jour, le maire de Paris, Bertrand Delanoë, représenté par sa première adjointe, mon amie Anne Hidalgo, dont les mots sont empreints d’humanisme, de Liberté et – ce qui nous importe le plus – de l’incertitude de ce que sera la fin de vie lorsque, comme le chante si joliment Jacques Brel, la pendule d’argent qui ronronne au salon nous attendra.
http://www.romero-blog.fr/archive/2010/01/30/discours-pour-les-30-ans-de-l-admd.html
Sarah Wootton: Only clearer laws can bring compassion to the euthanasia debate
A not guilty verdict in the case of Kay Gilderdale was the right decision. Whilst we don't condone acting outside of the law, and it is important that these kinds of cases are investigated, the judge is now able to use his discretion when sentencing Kay Gilderdale. Given that she pleaded guilty to assisting in a suicide, she will be sentenced under the Suicide Act; therefore, the judge is not forced to impose a mandatory sentence.
As demonstrated here and in the case of Frances Inglis last week, the existing law doesn't work in practice and is not in line with public opinion. Ultimately, we need a full public consultation on whether the law should change, to regulate and legalise assisted dying for terminally ill people and to create a specific or partial defence of "mercy killing" for these offences. The law needs to protect potentially vulnerable people by being tough on malicious or irresponsible behaviour, but it also needs to be flexible enough to show mercy when the motivation is clearly compassion.
A not guilty verdict in the case of Kay Gilderdale was the right decision. Whilst we don't condone acting outside of the law, and it is important that these kinds of cases are investigated, the judge is now able to use his discretion when sentencing Kay Gilderdale. Given that she pleaded guilty to assisting in a suicide, she will be sentenced under the Suicide Act; therefore, the judge is not forced to impose a mandatory sentence.
As demonstrated here and in the case of Frances Inglis last week, the existing law doesn't work in practice and is not in line with public opinion. Ultimately, we need a full public consultation on whether the law should change, to regulate and legalise assisted dying for terminally ill people and to create a specific or partial defence of "mercy killing" for these offences. The law needs to protect potentially vulnerable people by being tough on malicious or irresponsible behaviour, but it also needs to be flexible enough to show mercy when the motivation is clearly compassion.
Paris, le 25 Janvier 2010
La semaine dernière j’ ai décidé de rendre visite à Ludwig Minelli à Forch, près de Zurich. Je me trouvais en Suisse et j’ étais curieuse de voir ses nouvelles installations (modernes et fonctionnelles) ainsi que de passer un moment à discuter avec lui.
En effet, nous nous connaissons depuis quelques années, mais je n’ avais jamais encore eu l’ occasion de vraiment passer quelques heures avec lui pour vraiment cerner le personnage.
J’ ai trouvé un homme affable, plein d’ humour , érudit. Je n’ ai pas vu le temps passer…..On a parlé de tout et de rien, mais évidemment surtout de la cause pour laquelle nous militons.
La semaine dernière j’ ai décidé de rendre visite à Ludwig Minelli à Forch, près de Zurich. Je me trouvais en Suisse et j’ étais curieuse de voir ses nouvelles installations (modernes et fonctionnelles) ainsi que de passer un moment à discuter avec lui.
En effet, nous nous connaissons depuis quelques années, mais je n’ avais jamais encore eu l’ occasion de vraiment passer quelques heures avec lui pour vraiment cerner le personnage.
J’ ai trouvé un homme affable, plein d’ humour , érudit. Je n’ ai pas vu le temps passer…..On a parlé de tout et de rien, mais évidemment surtout de la cause pour laquelle nous militons.
Mother cleared in ME death trial
A mother has been found not guilty of the attempted murder of he severely ill daughter who had ME.
Bridget Kathleen Gilderdale, 55, of Stonegate, East Sussex, [UK] was cleared of attempting to murder Lynn Gilderdale by jurors at Lewes Crow Court.
Gilderdale had previously admitted aiding and abetting the suicide of her 31-year-old daughter and was given a 12-month conditional discharge.
Miss Gilderdale was found dead at their home on 4 December.
After the jury had delivered its verdict, Mr Justice Bean said: "I do not normally comment on the verdicts of juries but in this case their decision, if I may say so, shows common sense, decency and humanity which makes jury trials so important in a case of this kind.
"There is no dispute that you were a caring and loving mother and that you considered that you were acting in the best interests of your daughter."
Bridget Kathleen Gilderdale, 55, of Stonegate, East Sussex, [UK] was cleared of attempting to murder Lynn Gilderdale by jurors at Lewes Crow Court.
Gilderdale had previously admitted aiding and abetting the suicide of her 31-year-old daughter and was given a 12-month conditional discharge.
Miss Gilderdale was found dead at their home on 4 December.
After the jury had delivered its verdict, Mr Justice Bean said: "I do not normally comment on the verdicts of juries but in this case their decision, if I may say so, shows common sense, decency and humanity which makes jury trials so important in a case of this kind.
"There is no dispute that you were a caring and loving mother and that you considered that you were acting in the best interests of your daughter."
Retired physicist home-brewed cyanide for tea-cup suicide pact with wife
A devoted elderly couple unable to bear living apart committed suicide by drinking cyanide from tea cups at their dining room table, an inquest heard.
Retired physicist Arthur Prior, 90, is believed to have brewed the deadly poison himself in a lab in the basement of their 600,000 Pounds home.
He sat down with his wife of 60 years, Mary, 87, and they held hands as they sipped from the cups together, after writing suicide notes to their four children.
Mr Prior was found lying on the floor and his wife slumped in a chair at the leafy detached house in Malvern, Worcestershire [UK].
Neighbours said that the couple were 'inseparable' and could not face spending their last days apart. They had recently agreed she could be better looked after in a care home after health problems left her frail.
Retired physicist Arthur Prior, 90, is believed to have brewed the deadly poison himself in a lab in the basement of their 600,000 Pounds home.
He sat down with his wife of 60 years, Mary, 87, and they held hands as they sipped from the cups together, after writing suicide notes to their four children.
Mr Prior was found lying on the floor and his wife slumped in a chair at the leafy detached house in Malvern, Worcestershire [UK].
Neighbours said that the couple were 'inseparable' and could not face spending their last days apart. They had recently agreed she could be better looked after in a care home after health problems left her frail.
Martin Amis has called for euthanasia booths in every street corner
Euthanasia booths should be put on street corners for pensioners to end their lives with 'a martini and a medal', novelist Martin Amis said yesterday.
Britain is facing a demographic timebomb as its ageing population places an impossible burden on society, the controversial writer claimed.
Anti-euthanasia campaigners reacted with horror to the call for 'death booths' for pensioners and branded Amis 'repugnant and offensive'.
The 60-year-old novelist predicted Britain could be engulfed by a 'civil war' between the old and young if it did not tackle its ageing population.
Euthanasia booths should be put on street corners for pensioners to end their lives with 'a martini and a medal', novelist Martin Amis said yesterday.
Britain is facing a demographic timebomb as its ageing population places an impossible burden on society, the controversial writer claimed.
Anti-euthanasia campaigners reacted with horror to the call for 'death booths' for pensioners and branded Amis 'repugnant and offensive'.
The 60-year-old novelist predicted Britain could be engulfed by a 'civil war' between the old and young if it did not tackle its ageing population.
Patients who travel to Switzerland to die in Zurich's so-called suicide clinics could face a 50,000 Swiss franc ($53,000) ''death tax''.
Right-wing Swiss politicians, concerned about what they describe as death tourism, want groups such as Dignitas to pay large fines for helping anyone who has not lived in Zurich for at least a year to die.
A referendum on the proposal will be held this year. If more than 50 per cent of the electorate votes in favour, it could become law.
Dignitas charges about 8400 francs to organise a suicide. The fine could be six times that, and Swiss politicians believe it would be incorporated into the fee charged to people ending their lives.
Hundreds of people have died at the Dignitas euthanasia clinic in Zurich since it opened 11 years ago.
Daniel Suter, Zurich president of the Swiss Federal Democratic Union party, which is behind the vote, said: ''Normally people come to Zurich two or three days before they want to die. By saying people must live in Zurich for at least a year, we believe this will cut down the number of suicides dramatically. There needs to be an end to death tourism.
''We anticipate the fine will be passed on to the person committing suicide by the suicide organisation. Effectively foreigners will be discouraged from coming to Zurich to die.''
Right-wing Swiss politicians, concerned about what they describe as death tourism, want groups such as Dignitas to pay large fines for helping anyone who has not lived in Zurich for at least a year to die.
A referendum on the proposal will be held this year. If more than 50 per cent of the electorate votes in favour, it could become law.
Dignitas charges about 8400 francs to organise a suicide. The fine could be six times that, and Swiss politicians believe it would be incorporated into the fee charged to people ending their lives.
Hundreds of people have died at the Dignitas euthanasia clinic in Zurich since it opened 11 years ago.
Daniel Suter, Zurich president of the Swiss Federal Democratic Union party, which is behind the vote, said: ''Normally people come to Zurich two or three days before they want to die. By saying people must live in Zurich for at least a year, we believe this will cut down the number of suicides dramatically. There needs to be an end to death tourism.
''We anticipate the fine will be passed on to the person committing suicide by the suicide organisation. Effectively foreigners will be discouraged from coming to Zurich to die.''
MSP Margo McDonald, who has Parkinson's disease, tables bill to allow doctors to end terminally-ill patients' lives
A cross-party committee at the Scottish parliament is to investigate legalising assisted suicide after an MSP succeeded in tabling a bill to allow doctors to end the lives of terminally-ill patients.
The committee may visit the Dignitas clinic in Switzerland, where more than 100 Britons have already killed themselves, and call evidence from other European and north American states where assisted suicide is already legal as part of their inquiry.
Margo McDonald, the independent MSP who tabled the bill, said she was now more hopeful her bill would be passed than in 2008 when, in an emotionally-charged speech, she first told the Scottish parliament she wanted the freedom to end her life legally if her condition degenerated significantly. She has Parkinson's disease.
The committee may visit the Dignitas clinic in Switzerland, where more than 100 Britons have already killed themselves, and call evidence from other European and north American states where assisted suicide is already legal as part of their inquiry.
Margo McDonald, the independent MSP who tabled the bill, said she was now more hopeful her bill would be passed than in 2008 when, in an emotionally-charged speech, she first told the Scottish parliament she wanted the freedom to end her life legally if her condition degenerated significantly. She has Parkinson's disease.
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